I had my phone consult with Dr. Coulam last week, and she wants more blood, so we will not cycle this month. She did feel that IVIG or intralipids would be the treatment for me. If I want intralipids it looks like I would need to find a way to get to Chicago once a month for the first trimester once I get pregnant. If I choose IVIG it can be done in SC (a 3 hr drive away). The big difference is cost. $3,000 for IVIG and $600 for intralipids. So we are looking into both possibilities and still waiting to find out if insurance might cover some of it. Meantime we will have the other blood tests done and wait and see.
My work up from my PCP showed I am Vitamin D deficient so now I'm taking 5000iu of Vitamin D 4 days a week. Hopefully that will improve some of my issues.
This has been a very long journey of IF/RPL and I need it to come to an end soon. That end may be without a child and that's something I am coming closer to being at peace with.
About Me
- amylynn
- North Carolina, United States
- I'm a 36yr old, wife, wannabe mom, horticulturalist, halfass knitter, and sometimes runner, searching for my grace
3 comments:
hoping the end is what you want but praying, no matter what, it brings you peace
I have much to learn from you. Even though we are both dealing with RPL, we seem to be in different spots. Your PCP sounds great and it sounds like you have options to weigh, which is great.
Keep us posted on how things progress. I wish you the best of luck.
B, cod liver oil is also excellent for vitamin D. I have enjoyed taking it off and on. You can get capsules or also the liquid flavored with citrus which actually to me tastes really good. drrons.com is a good source for a high quality variety.
Tell me if you read Motherloss. Also I am reading Unbowed by Wangari Maathai and keep thinking of you with her story. Loveyou.
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